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“My doctor detected a tumor as big as a softball, and he thought it was cancer….Well, old girl, my doc told me, you need a total hysterectomy.”
Read the full story…
It’s May 2004, and on my way in to my annual exam I felt O.K. I had the same San Francisco gynecologist for 20 years, and these exams had become very routine. I was 55, was taking a low-dose birth control pill to control hot flashes, and had had heavy periods for several years, which I expected would just end on their own. My abdomen was a little thick, but I attributed that to some modest weight gain. I had no idea I was anemic or that I was in for quite the roller coaster ride over the next weeks.
My gynecologist detected something and scheduled an ultrasound for the very next day. I couldn’t believe anything was seriously wrong, but I did the test. Then he wanted me to get an MRI. After the MRI, he said I had a tumor as big as a softball, and he thought it was cancer. Soon I had a D & C in a hospital, where he did a hysteroscopy and biopsy. However, since he had me stop taking the birth control pills before the procedure, I was bleeding during the D & C and he said he hadn’t been able to see what was wrong. The biopsy was interpreted as being cancer, although I would find out later it wasn’t. Well, old girl, my doc told me, you need a total hysterectomy. There will be a big scar–it will be ugly. He gave me the name & number of a friend of his for a “second opinion” and said the 2 of them would operate on me together. What a nightmare. And I still hadn’t read about the possible complications of hysterectomy—potential incontinence, difficulty having an orgasm, a long recovery, and the financial cost–especially for someone like me with a PPO.
That weekend was Memorial Day, and I went to a party. When I talked with a dear friend, she suggested I do some research on the Internet beginning with About.com. I started that very night. I found no local experts, but a specialist in New York. I sent him a concise, detailed e-mail and within 24 hours got a message that he didn’t know anyone in San Francisco, but he knew a Dr. in L.A., whom I also e-mailed. Then I found Dr. Indman’s website. The morning after the holiday I was on the phone scheduling an appointment. In a couple of days I heard from the fibroid expert in LA, who highly recommended Dr. Indman.
From the beginning, Dr. Indman was reassuring and very informative. He gave me a diagnostic hysteroscopy in his office. I was pretty scared—after all, my former doctor thought I should be under general anesthesia to have this done. Dr. Indman was so skilled I could not detect that he had given me a local anesthetic. And with the camera images of my fibroids visible on the monitor, I could see there was no tumor as big as a softball, but a lot of smaller submucous fibroids and one in the wall. I also had a blood test that indicated I was very anemic. I started taking iron, and was scheduled for hysteroscopic removal and endrometrial ablation.
The afternoon before, I arrived at the office for some prep. Then I stayed at a pleasant local hotel and took a cab to the Surgical Center. I was given anesthesia, was out for about 45 minutes, and then rapidly woke up, feeling great and talkative. [J.S. had a hysteroscoic myomectomy and endometiral ablation. - P.I.] A friend picked me up and drove north for an hour. I was very surprised to have no post-surgical pain or bleeding. A girlfriend came over, expecting me to be very out of it and we spent the evening chatting. And in the six years since my procedures, I have had no problems or recurrences. I consider myself very fortunate. I found Dr. Indman just in time! — J.S.
Comment: I saw J.S. this week for her routine exam, which was essentially normal. After menopause, fibroids often shrink, as had happened to J.S. Had I relied on the medical records, instead of doing my own evalution to determine the best treatment, I would have made a serious error, as I found no evidence of cancer, and found a submucous fibroid that could be treated as an outpatient by hysteroscopic myomectomy. In addition I did an endometrial ablation, which destroys the lining of the uterus to decrease the chances of further bleeding. This was easily done with the same instruments I used to remove the fibroid and were already in the uterus. A hysterectomy is not a bad operation if it is needed, but J.S. was able to solve her problem after accurate diagnosis with a quick outpatient procedure. Now that six years have past and she is well into menopause, it is very unlikely she will need further surgery. —Paul Indman, M.D.